Resources 2018-01-05T16:34:39+00:00

Resources

Understanding a Down Syndrome Diagnosis is an accurate, balanced, and up-to-date booklet for use when delivering a diagnosis of Down syndrome and is part of the National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky’s Human Development Institute (HDI).

DownSyndromePregnancy.org is part of the National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky’s Human Development Institute (HDI).

The website offers a free downloadable practical guide for expectant moms, Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome which was co-written by KIIDS member, Nancy McCrea Iannone. The website also hosts an interactive blog, which gives expectant parents a place to ask questions, voice concerns, and receive feedback.

LOCAL RESOURCES

New Jersey Early Intervention Program http://nj.gov/health/fhs/eis/index.shtml
New Jersey Coalition for Inclusive Education (NJCIE) http://njcie.org/
New Jersey Children’s System of Care http://www.performcarenj.org/index.aspx
Statewide Parent Advocacy Network (SPAN) http://www.spanadvocacy.org/
Trisomy 21 Program at CHOP    

 

http://www.chop.edu/centers-programs/trisomy-21-program
Nemours/DuPont Hospital (DE) https://www.nemours.org/service/medical/down-syndrome.html?location=naidhc

NATIONAL/INTERNATIONAL RESOURCES

National Down Syndrome Society (NDSS) http://www.ndss.org/
National Down Syndrome Congress (NDSC) http://www.ndsccenter.org
Global Down Syndrome Foundation https://www.globaldownsyndrome.org/
Down Syndrome Diagnosis Network http://www.dsdiagnosisnetwork.org/
Down Syndrome Education International http://www.dseinternational.org/en-gb/

GENERAL RESOURCES

The Woodbine House http://www.woodbinehouse.com/Down-Syndrome.29.0.0.2.htm